Has anyone seen this

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Permalink Reply by cherylbwaters on November 4, 2009 at 5:36am

Angel Bear, you keep coming up with such great vacation ideas.

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Permalink Reply by angelkarhu on November 4, 2009 at 12:33pm

Maybe I should just be a travel agent. I saw it as one of those adds at the bottom of the page on one of the ravelry forums. Hope your trial is going good. Keep up the good lawyering and knitting.

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Permalink Reply by cherylbwaters on November 4, 2009 at 8:25pm

Well, it was a bench trial (to the judge, no jury) and we finished turning in today what needed to be turned in. I don't know how long the judge will take to decide. Could be tomorrow, could be next week, could be months from now. [In one trial it was 7 months before the judge ruled.] But I think he will be serving up our heads on platters.

Surely, there needs to be a travel agent who specializes in or strictly does knitting vacations! Maybe it's your calling.

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Permalink Reply by angelkarhu on November 4, 2009 at 10:05pm

Sorry, there already are several, I am sure. There are knitting cruises under craft cruises, and I see adds for others on ravelry all the time. If I am unable to got to Scotland or England due to medical issues, I can always just go on a dialysis cruise. And yes there are actually cruises just for people on dialyis fully equiped with dialysis machines, nurses and doctors in case anything goes amiss. Insurance just doesn't cover it, so it is spendy. It so sucks having the health system we have here. No matter what you do you are screwed. I have seriously thought of moving to Finland just for the health care.

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Permalink Reply by cherylbwaters on November 4, 2009 at 10:26pm

Angel Bear, I totally understand why you would want to move to Finland. I imagine it would be fairly easy for you to do so since you have relatives there. Am I wrong?

I'm not surprised that they have dialysis cruises. After being in the ER with my MIL and seeing adds for the ritzy suites available in the hospitals, I'm not surprised about much.

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Permalink Reply by angelkarhu on November 4, 2009 at 11:06pm

Yes, I do and since my father was born there it would be really easy for me to gain citizenship, even dual citizenship. I would just have to prove that my father was born there and show proof of income, which is my only compication right now, since dialysis prevents me from working due to the times of dialysis, and how it drains the heck out of me despite the medications to prevent severe anemia. It is just the nature of the treatments and the kidney disease. And I have been out of work so much already that most employers don't want to hire me because they see the gap in unemployment and wonder why. Can't work, and when I am able to work, no one wants to hire. Its a no win scenerio that I can't climb out of so I am literally stuck.

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Permalink Reply by cherylbwaters on November 4, 2009 at 11:27pm

Is there some sort of job you could do over the net? Just trying to think of different ways to help. What a dilemma for you.

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Permalink Reply by angelkarhu on November 5, 2009 at 3:19pm

Thanks for the advice and support. I just recieved the letter from the transplant committe that they refuse to do a normal transplant on me due to other medical issues, so my only hope now is the experimental procedure that insurance most likely won't cover because it is experimental. And this is only if my sister is a match, and if not, then the odds of me finding a donor with the same blood/tissue type of me to donate not just a kidney, but bone marrow, and that is healthy is really not likely. I am still looking for a positive in this scenerio. I usually have no problem in finding the positives in things, but this time, its hard to find it. The mere thought of a lifetime of dialysis is not on my list of fun things.

Sorry but I just had to get that off my chest.

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Permalink Reply by cherylbwaters on November 5, 2009 at 6:30pm

Angel Bear, I'm so glad you feel comfortable enough to get that off your chest with us.

You know we will do anything to help. I wish my magic wand would work. I don't know enough about the transplant system. Is there another group to approach? Is there a foundation that can be approached that helps with experimental procedures?

Permalink Reply by angelkarhu on November 5, 2009 at 7:35pm

We are still awaiting the results of my sisters blood test to see if she is even compatable. We are hoping for the dual transplant at Stanford, assuming I even qualify for that, and since I haven't had any major illnesses, other than dialysis, pop up I may not qualify, so then we can check out a similar program at UofW in Seattle. But if I don't qualify in Stanford, I most likely wouldn't in Seattle either, so then I will just search the globe for someone who will. I will not and I repeat WILL NOT spend the rest of my life on dilaysis.

Permalink Reply by cherylbwaters on November 5, 2009 at 7:43pm

I'll be pulling for you!